Manual for parents and patients Renal Pediatric Transplant Unit
SP
Link
Technique for urine culture in children
SP
Link
Manual for parents and patients Peritoneal Dialysis Unit
SP
Link
Information for patients and parents for care after pediatric renal transplant
SP
Link
Information on epidemiology of HUS monthly reports
SP
Link
Information about most frequent kidney diseases
SP
Link
Information for care after pediatric renal transplant
SP
Link
Video on renal diseases in infancy
SP
Link
SP
Link
Information for the community regarding common nephrological diseases Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI Infeccion urinaria Hydronephrosis Dilatación de la vía urinaria en el feto HUS Prevención de SUH CKD Ninos con resgo de presentar enfermedad renal crónica Hematuria Hematuria Normal Kidney Cuidado de los rinones Miscellaneous Poliuria Miscellaneous […]
SP
Link
Website offers fact sheets on UTI, urinary catheters and urine samples.
EN
Link
Website offers information sheets on a wide range of renal and urological conditions in children.
EN
Link
Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for kidney patients.
EN
Link
Bangla
Link
Detection of renal anomalies by antenatal ultrasound.
Bangla
Link
Fact sheet on the relationship between low birth weight and preterm deliveries and CKD.
Bangla
Link
Fact sheet on the various causes of acute glomerulonephrirtis.
Bangla
Link
Fact sheet on AKI and its management.
Bangla
Link
Causes of hypertension in infants and children.
Bangla
Link
Fact sheet on how contrast media can cause AKI.
Bangla
Link
Fact sheet on the presentation, complications and management of PUVs.
Bangla
Link
Fact sheet on the causes and management of CKD in infants and children.
Bangla
Link
Fact sheet on the presentation and management of the nephrotic syndrome in children.
Bangla
Link
Fact sheet on cystinosis including the causes, symptoms and treatment of the disease.
PO
Link
Facebook page for cystinosis patients and their families.
Link
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families with CKD kids.
PO
Link
Organ donation orientation and laws. Brazilian transplant registry news.
EN, PO
Link
The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked questions.
PO
Link
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic texts on CKD, hypertension, diabetes and so on.
PO
Link
Books and videos on living with reduced kidney function from the Canadian Kidney Knowledge Translation and Generation Network.
EN
Link
Infographic on planning for dialysis from the Canadian Kidney Knowledge Translation and Generation Network.
EN
Link
Educational tools including modules, booklets, activity sheets, and glossary from the Canadian Kidney Knowledge Translation and Generation Network.
EN
Link
Family resources for many pediatric renal disorders.
EN
Link
Family resources for many pediatric renal disorders.
FR
Link
General pediatrics topics and many pediatric nephrology topics including Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys and Girls, Cystoscopy, Urinary Catheter Care at Home, Voiding Cystourethrogram (VCUG)…..etc.
EN
Link
A not-for-profit organization with the mission of supporting patients and families living with atypical Hemolytic Uremic Syndrome.
EN
Link
A booklet from Montreal Children’s Hospital for families with children with hydronephrosis in pdf format.
EN
Link
General information on kidney diseases (adults)
SP
Link
Official website of CKF, non- governmental organization providing funding support and various programs to paediatric nephrology patients.
CH, EN
Link
Official website of HKPNS with patient education materials.
CH, EN
Link
Official website of HKKF with patient education materials and support programs
CH, EN
Link
Data provision on kidney diseases.
CH, EN
Link
Official website of HKKF with patient education materials and support programs
CH, EN
Link
A platform providing Q & A for the community on medical diseases
CH
Link
A platform providing popular science articles written by medical professionals
CH
Link
Data provision on rare disease
CH
Link
Data provision on the recent advance of medical Science in China.
CH
Link
Data provision on Genetic kidney disease in China.
CH
Link
Website offering information on renal diseases, dialysis and transplantation
DA
Link
The Egyptian Group for Orphan Renal Diseases
AR/EN
Link
Site offers info on the university’s clinical services, research activities and educational services.
AR
Link
Site offers clinical services, research activities and educational services.
EN
Link
Information on the progress of cystinosis management in Egypt
EN
Link
Research, Educational Material, Biopsy Requests.
DA
Link
Platform for primary hyperoxaluria.
EN
Link
Guide for rare renal diseases from the website Orphan Kidney Diseases.
Link
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
FR
Link
Comic book about the nephrotic syndrome.
FR
Link
Patients association, chronic kidney disease.
FR
Link
Guide for urinary incontinence.
FR
Link
Guide for nocturnal enuresis.
FR
Link
Illustrated guide for the nephrotic syndrome.
FR
Link
Comic book about renal transplantation.
FR
Link
Patients association, chronic kidney disease, forums.
FR
Link
Illustrated guide to multicystic dysplastic kidney.
FR
Link
Association of all German nephrologists.
GE
Link
ERKNET, the European Rare Kidney Disease Reference Network
EN, GE
Link
Brochure on children with cystic renal disorders
GE
Link
A discussion of vesico-ureteral reflux. Additional pediatric nephrology topics accessible from links on the page.
GE
Link
Brochure on cystinosis from ERKNET
GE
Link
Information on atypical HUS
GE
Link
Patient information on the nephrotic syndrome from ERKNET
GE
Link
Page on multicystic dysplastic kidneys
GE
Link
Page from the Hungarian National Kidney Program on the nephrotic syndrome.
HU
Link
Home page of the Hungarian National Kidney Program
HU
Link
Home page of the Hungarian Transplant Foundation
HU
Link
Home page of the Hungarian Society of Nephrology
HU
Link
Page on HUS from the Experimental Zooprophylactic Institute of Venice.
IT
Link
Page on HUS from the Italian Portal of Epidemiology For Public Health.
IT
Link
Information on the nephrotic syndrome from the Italian Parent’s Guide.
IT
Link
Page on Dent’s Disease from Telethon Foundation
IT
Link
Association for citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, and their families.
IT
Link
Non-profit organization aiming at the prevention and early detection of renal disease, diffusion of transplantation, and promoting the dialogue between patients, healthcare professionals and industry associations.
IT
Link
Web page on Berger’s Disease (IgA Nephropathy)
IT
Link
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and transplantation of organs, tissues and cells.
IT
Link
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
IT
Link
Parental information about rare kidney diseases and pediatric nephrology services with specific expertise. Social assistance on law benefits.
EN, IT
Link
Website contains guidelines, contact information, forthcoming events
EN
Link
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
AR
Link
Information for patients and families onsupport programs for CKD and RRT patients.
SP
Link
Information on Kidney diseases and their early detection as the first steps in the prevention.
FR
Link
Site offers educational services and info on conferences of interest.
EN
Link
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of information brochures regarding different aspects in chronic kidney disease as well as after tx. They also support research projects.
NO
Link
Site offers info on kidney disease, news and events from SA, research grants and links to other websites.
EN
Link
Site offers info on the kidney, renal failure and diet in renal diseases.
EN
Link
Site offers info on events, nephrology training, practice guidelines and SA renal registry.
EN
Link
Quick guide for patients and parents Automatized Peritoneal Dialysis
SP
Link
Main nephrological diseases in children
SP
Link
Guides for family and patients Lowe disease
SP
Link
This is the website of cystinosis established by Turkish cystinosis family association.
TU
Link
Educational activities and information about kidney diseases.
EN/TU
Link
Contains educational material on hypertension for patients.
EN/TU
Link
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
TU
Link
Nationally accredited (Information Standard) Information on Rare renal diseases.
EN
Link
Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.
EN
Link
Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.
EN
Link
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
EN
Link
Topics: Care of a Foley Catheter, Dialysis, Hypertension, Kidney Failure, UTI.
AR/EN
Link