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Africa
Argentina
Hospital Italiano de Buenos Aires
Different topics of interest in general medicine: smoke cessation, food allergies, pediatricobesity
Sociedad Argentina de Pediatría
General health preventive measures. The website offers various materials about kidney disease in Spanish language. Please see the links below.
| Topic | Link |
| Nephrotic Syndrome | Sindrome nefrotico |
| UTI | Sindrome de mala eliminacion |
| UTI | Infeccion urinaria |
| Hydronephrosis | Dilatación de la vía urinaria en el feto |
| HUS | Prevención de SUH |
| CKD | Ninos con resgo de presentar enfermedad renal crónica |
| Hematuria | Hematuria |
| Normal Kidney | Cuidado de los rinones |
| Miscellaneous | Poliuria |
| Miscellaneous | Quistes renales |
| Miscellaneous | Pacientes con rinon único sano |
Fundación Sociedad Argentina De Pediatría
Information for pediatricians and for the community. In the community area preventive general health measures, orientaion for inhalers and facial mask use; growth curves and general information on enuresis and HUS.
Australia
Bangladesh
Brazil
Icrim Institute for Support to the Child/Adolescent with Renal Disease
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families with CKD kids.
Brazilian Society of Solid Organs Transplants
Organ donation orientation and laws. Brazilian transplant registry news.
Brazilian Society of Pediatrics
The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked questions.
Brazilian Society of Nephrology
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic texts on CKD, hypertension, diabetes and so on.
Canada
Hospital For Sick Children, Canada -About Kids Health
Topics: Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys and Girls, Cystoscopy, Urinary Catheter Care at Home, Voiding Cystourethrogram (VCUG).
China
LIFESPRING
Explains common renal diseases, contains FAQs and news regarding patient centred activities.
Denmark
Egypt
HOPE TEAM: ALEXANDRIA UNIVERSITY
Group aiming at the social and financial support of poor pediatric patients with renal disease.
EGYPTIAN SOCIETY OF NEPHROLOGY AND TRANSPLANTATION VIRTUAL ACADEMY
Prevention of renal disease, peritoneal dialysis, renal stones, fitness and renal disease.
CYSTINOSIS SUPPORT GROUP
Support for Egyptian families with cystinosis.
CAIRO UNIVERSITY CENTER FOR PEDIATRIC NEPHROLOGY AND TRANSPLANTATION
Research, Educational Material, Biopsy Requests.
Europe
France
TRANSFORME
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
Germany
Hungary
India
Italy
ANED (ASSOCIAZIONE NAZIONALE EMODIALIZZATI)
The Association “… is made between citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, their families and all those who are interested in achieving the aims of the Association. that are: prevention of kidney disease, a dialysis place for all people and more ‘close to home as possible, the promotion of the kidney transplantation policy.
FIR (FONDAZIONE ITALIANA DEL RENE)
The FIR non-profit organization brings together all patients with renal disease and all those – people, associations and organizations – who are engaged in dealing with kidney disease to treat them, to limit damage or to prevent them.
AIDO (ASSOCIAZIONE ITALIANA DONATORI DI ORGANO)
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and transplantation of organs, tissues and cells.
SOCIETÀ ITALIANA DI NEFROLOGIA
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
Jordan
FRIENDS OF KIDNEY DISEASE PATIENTS
Comprehensive Guide to Civil Society Organizations in Jordan.
Kuwait
KUWAIT MEDICAL ASSOCIATION
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
Lithuania
Mexico
MEXICAN KIDNEY FOUNDATION
Information for patients and families onsupport programs for CKD and RRT patients.
Morocco
MOROCCAN ASSOCIATION FOR COMBATING KIDNEY DISEASES
Information on Kidney diseases and their early detection as the first steps in the prevention.
Netherlands
New Zealand
Norway
LIVER AND KIDNEY TRANSPLANT SOCIETY
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of information brochures regarding different aspects in chronic kidney disease as well as after tx. They also support research projects.
Poland
Portugal
Republic of
Singapore
South Africa
Spain
Sweden
NATIONAL BOARD OF HEALTH AND WELFARE
SOCIALSTYRELSEN
Syrian Arab Republic
Turkey
TURKISH CYSTINOSIS ASSOCIATION
This is the website of cystinosis established by Turkish cystinosis family association.
TURKISH HYPERTENSION ASSOCIATION
Contains educational material on hypertension for patients.
TURKISH PEDIATRIC NEPHROLOGY ASSOCIATION
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
United Kingdom
RARE RENAL DISEASE
Nationally accredited (Information Standard) Information on Rare renal diseases.
TRANSITION TO ADULT CARE : READY STEADY GO PROGRAM
Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.
INFOKID (BAPN + RCPCH + BKPA)
Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.
United States
ALPORT SYNDROME FOUNDATION
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
