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Argentina

Sociedad Argentina de Pediatría

The official website of the Argentina Pediatrics Society. It offers information about general preventive health measures including some pediatric nephrology topics e.g. nephrotic syndrome, UTI, hydronephrosis, and HUS. Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI Infeccion urinaria Hydronephrosis Dilatación de la vía urinaria en el feto HUS Prevención de SUH […]

SP
Link

Fundación Sociedad Argentina De Pediatría

Website is non-functional at present

SP
Link

Australia

The Royal Children’s Hospital Melbourne

Website offers fact sheets on UTI, urinary catheters and urine samples.

EN
Link

Monash Childrens Hospital

Website offers information sheets on a wide range of renal and urological conditions in children.

EN
Link

Kidney Health Australia

Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for kidney patients.

EN
Link

Bangladesh

Phimosis

Fact sheet on phimosis.

Bangla
Link

Role of Antenatal Ultrasound in kidney disease

Detection of renal anomalies by antenatal ultrasound.

Bangla
Link

Chronic kidney disease in preterm and low birth weight infants

Fact sheet on the relationship between low birth weight and  preterm deliveries and CKD.

Bangla
Link

Glomerulonephritis-RPGN

Fact sheet on the various causes of acute glomerulonephrirtis.

Bangla
Link

Acute Kidney Injury

Fact sheet on AKI and its management.

Bangla
Link

Hypertension

Causes of hypertension in infants and children.

Bangla
Link

Contrast Induced Nephropathy

Fact sheet on how contrast media can cause AKI.

Bangla
Link

Posterior urethral valve

Fact sheet on the presentation, complications and management of PUVs.

Bangla
Link

Chronic Kidney Disease

Fact sheet on the causes and management of CKD in infants and children.

Bangla
Link

Nephrotic Syndrome

Fact sheet on the presentation and management of the nephrotic syndrome in children.

Bangla
Link

Brazil

Muitos Somos Raros

PO
Link

Patient Support Group For Cystinosis

Patient and family support list.

Link

Icrim Institute for Support to the Child/Adolescent with Renal Disease

Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families with CKD kids.

PO
Link

Brazilian Society of Solid Organs Transplants

Organ donation orientation and laws. Brazilian transplant registry news.

EN, PO
Link

Brazilian Society of Pediatrics

The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked questions.

PO
Link

Brazilian Society of Nephrology

The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic texts on CKD, hypertension, diabetes and so on.

PO
Link

Patient Support Group For Cystinosis

Link

Canada

Living with Kidney Disease:

EN
Link

Choosing a Dialysis Therapy

EN
Link

Kidney Health Resources for Chronic Kidney Disease (Kidney Twins)

EN
Link

Canadian Association of Paediatric Nephrology

EN
Link

La Maladie Rénale Chronique

FR
Link

Hospital For Sick Children, Canada -About Kids Health

Topics: Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys and Girls, Cystoscopy, Urinary Catheter Care at Home, Voiding Cystourethrogram (VCUG).

EN
Link

SHUa Canada

EN
Link

Montreal Childrens Hospital

EN
Link

McMaster Childrens Hospital

EN
Link

China

CHINA-DOLIS CENTER FOR RARE DISORDERS

CH, EN
Link

龙华古寺生命源泉透析基地 – 儿童肾病关爱网

CH
Link

知乎

CH
Link

百科名医

CH
Link

百度百科

CH
Link

搜狐视频

CH
Link

医院的科普书~~解读肾移植

CH
Link

LIFESPRING

Explains common renal diseases, contains FAQs and news regarding patient centred activities.

CH
Link

丁香医生

CH
Link

Denmark

DANISH KIDNEY ASSOCIATION

DA
Link

Egypt

EGORD

The Egyptian Group for Orphan Renal Diseases

AR/EN
Link

MANSOURA UNIVERSITY WEBSITE

Site offers info on the university’s clinical services, research activities and educational services.

AR
Link

EGYPTIAN SOCIETY OF NEPHROLOGY

Site offers clinical services, research activities and educational services.

EN
Link

CYSTINOSIS SUPPORT GROUP

Support for Egyptian families with cystinosis. neveenase@yahoo.com neveen.soliman@hotmail.com

EN
Link

CAIRO UNIVERSITY CENTER FOR PEDIATRIC NEPHROLOGY AND TRANSPLANTATION

Research, Educational Material, Biopsy Requests.

DA
Link

OxalAfrica

Platform for primary hyperoxaluria.

EN
Link

France

ORKID

Link

TRANSFORME

Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.

FR
Link

LES REINS GONFLÉS

FR
Link

FONDATION DU REIN

Patients association, chronic kidney disease.

FR
Link

TOUSALECOLE

FR
Link

ENURÉSIE

FR
Link

LE SYNDROME NEPHROTIQUE

FR
Link

LE RETOUR DES REINS TROGNONS

FR
Link

RENALOO

Patients association, chronic kidney disease, forums.

FR
Link

DYSPLASIE RÉNALE MULTIKYSTIQUE

FR
Link

Germany

GERMAN SOCIETY OF NEPHROLOGY (DGFN)

Association of all German nephrologists.

GE
Link

GERMAN PEDIATRIC NEPHROLOGY ASSOCIATION (GPN)

Association of German Ped. Nephrologists.

EN, GE, TU
Link

KINDERNETZWERK

EN, GE
Link

CYSTIC KIDNEY DISEASE IN CHILDREN

GE
Link

KIDSDOC

GE
Link

SOZIALE PÄDIATRIE UND JUGENDMEDIZIN

GE
Link

SELF HELP GROUP

GE
Link

AZQ

GE
Link

MERCK

GE
Link

MEDLEXI.DE

GE
Link

Hungary

NEMZETI VESI PROGRAM

HU
Link

NATIONAL KIDNEY PROGRAM

HU
Link

TRANSPLANT FOUNDATION

HU
Link

HUNGARY SOCIETY FOR NEPHROLOGY

HU
Link

India

UTI prevention

Tamil
Link

Nephrotic Syndrome Diet

Tamil
Link

Bedwetting

Tamil
Link

Bedwetting

Gurajati
Link

Nephrotic Syndrome

Gurajati
Link

Urine Culture

Gurajati
Link

CIC

hindi
Link

Nephrotic Syndrome

Malayalam
Link

Immunocompromised child

Malayalam
Link

SLE

Malayalam
Link

Italy

EXPERIMENTAL ZOOPROPHYLACTIC INSTITUTE OF THE VENEZIE

IT
Link

THE PORTAL OF EPIDEMIOLOGY FOR PUBLIC HEALTH

IT
Link

NEPHROTIC SYNDROME

IT
Link

VACTREL ASSOCIATION

IT
Link

TELETHON FOUNDATION

IT
Link

ANED (ASSOCIAZIONE NAZIONALE EMODIALIZZATI)

The Association “… is made between citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, their families and all those who are interested in achieving the aims of the Association.  that are: prevention of kidney disease, a dialysis place for all people and more ‘close to home as possible, the promotion of the […]

IT
Link

FIR (FONDAZIONE ITALIANA DEL RENE)

The FIR non-profit organization brings together all patients with renal disease and all those – people, associations and organizations – who are engaged in dealing with kidney disease to treat them, to limit damage or to prevent them.

IT
Link

COMITATO I MILANI

IT
Link

AIDO (ASSOCIAZIONE ITALIANA DONATORI DI ORGANO)

It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and transplantation of organs, tissues and cells.

IT
Link

SOCIETÀ ITALIANA DI NEFROLOGIA

Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.

IT
Link

Kuwait

KUWAIT MEDICAL ASSOCIATION

Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.

AR
Link

Lithuania

INFORMED

Link

WOMENSECR

Link

ALFA-WOMEN.COM

Link

MEDHELPSIS

Link

Mexico

MEXICAN KIDNEY FOUNDATION

Information for patients and families onsupport programs for CKD and RRT patients.

SP
Link

Morocco

MOROCCAN ASSOCIATION FOR COMBATING KIDNEY DISEASES

Information on Kidney diseases and their early detection as the first steps in the prevention.

FR
Link

Netherlands

EXPERTISE IN KAART

Link

ERFELIJKHEID.NL

Link

NIERSTICHTING

Link

NIEREN.NL

Link

CYSTINOSE GROUP NEDERLANDS

Link

KIND EN GROEI

Link

CUREIHUS

Link

KIDNEYTUBE

Link

CENTER FOR TUBULAR DISORDERS (KIDTUBE)

Link

KIDNEY FOUNDATION

Link

New Zealand

KIDSHEALTH, THE PAEDIATRIC SOCIETY OF NEW ZEALAND

EN
Link

Nigeria

Nigerian Association of Nephrology

Site offers educational services and info on conferences of interest.

EN
Link

African Pediatric Nephrology Association

EN
Link

Norway

LIVER AND KIDNEY TRANSPLANT SOCIETY

This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of information brochures regarding different aspects in chronic kidney disease as well as after tx. They also support research projects.

NO
Link

Poland

LIFE HEALTH DOCTOR

Link

STOLICA ZDROWIA

Link

MEDME

Link

PO.DURANDHEDT.DU

Link

ZESPOL AIPORTA

Link

ZDROWY PORTAL

Link

HIPEROKSALURIA INFORMACJA O PACJENCIE

Link

MEDIA PLANET

Link

WYLECZ TO

Link

GUIDE FOR PATIENTS AND FAMILIES

Link

Portugal

NORTAO

Link

TUA SAUDE

PO
Link

PRO RENAL

PO
Link

INFOESCOLA

PO
Link

PORTAL DA DIALISE

PO
Link

ABCMED

PO
Link

Republic of

KOREAN SOCIETY OF PEDIATRIC NEPHROLOGY

KO
Link

Singapore

CHILDREN’S KIDNEY CENTER, KTP-NATIONAL UNIVERSITY CHILDREN’S MEDICAL INSTITUTE

EN
Link

South Africa

South African National Kidney Foundation

Site offers info on kidney disease, news and events from SA, research grants and links to other websites.

EN
Link

Kwa-Zulu Natal Kidney Association

Site offers info on the kidney, renal failure and diet in renal diseases.

EN
Link

NATIONAL KIDNEY FOUNDATION OF SA

EN
Link

SOUTH AFRICAN RENAL SOCIETY

Site offers info on events, nephrology training, practice guidelines and SA renal registry.

EN
Link

RENAL CARE SOCIETY OF SOUTH AFRICA

EN
Link

Spain

SYNDROMES

SP
Link

PATIENT SUPPORT GROUP

SP
Link

AEP

SP
Link

LOWE SYNDROME PROJECT

SP
Link

Sweden

CYSTNJURAR

Link

KAROLINSKA INSTITUT

Link

MEDICINE

Link

Syrian Arab Republic

CHILD CLINIC

Link

WEB TEB

AR
Link

Turkey

TURKISH CYSTINOSIS ASSOCIATION

Link

TURKISH CYSTINOSIS ASSOCIATION

This is the website of cystinosis established by Turkish cystinosis family association.

TU
Link

KIDNEY FOUNDATION

Educational activities and information about kidney diseases.

EN/TU
Link

TURKISH HYPERTENSION ASSOCIATION

Contains educational material on hypertension for patients.

EN/TU
Link

TURKISH PEDIATRIC NEPHROLOGY ASSOCIATION

Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.

TU
Link

United Kingdom

LOWE SYNDROME TRUST

EN
Link

NHS CHOICES

EN
Link

KIDNEY RESEARCH UK

EN
Link

PKD CHARITY

EN
Link

RARE RENAL DISEASE

Nationally accredited (Information Standard) Information on Rare renal diseases.

EN
Link

TRANSITION TO ADULT CARE : READY STEADY GO PROGRAM

Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.

EN
Link

INFOKID (BAPN + RCPCH + BKPA)

Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.

EN
Link

PATIENT INFO

EN
Link

EUROPEAN HYPEROXALURIA CONSORTIUM

EN
Link

United States

UNC KIDNEY CENTER

EN
Link

FAIRVIEW

EN
Link

LOWE SYNDROME ASSOCIATION

EN
Link

UNC SCHOOL OF MEDICINE

CH/EN/SP
Link

NORD

EN
Link

NFK

EN
Link

NIDDK (NIH)

EN
Link

ALPORT SYNDROME FOUNDATION

General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.

EN
Link

THE BARTTER SITE

EN
Link

US NATIONAL LIBRARY OF MEDICINE

Topics: Care of a Foley Catheter, Dialysis, Hypertension, Kidney Failure, UTI.

AR/EN
Link