Sociedad Argentina de Pediatría
The official website of the Argentina Pediatrics Society. It offers information about general preventive health measures including some pediatric nephrology topics e.g. nephrotic syndrome, UTI, hydronephrosis, and HUS. Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI Infeccion urinaria Hydronephrosis Dilatación de la vía urinaria en el feto HUS Prevención de SUH […]
Fundación Sociedad Argentina De Pediatría
Website is non-functional at present
The Royal Children’s Hospital Melbourne
Website offers fact sheets on UTI, urinary catheters and urine samples.
Monash Childrens Hospital
Website offers information sheets on a wide range of renal and urological conditions in children.
Kidney Health Australia
Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for kidney patients.
Fact sheet on phimosis.
Role of Antenatal Ultrasound in kidney disease
Detection of renal anomalies by antenatal ultrasound.
Chronic kidney disease in preterm and low birth weight infants
Fact sheet on the relationship between low birth weight and preterm deliveries and CKD.
Fact sheet on the various causes of acute glomerulonephrirtis.
Acute Kidney Injury
Fact sheet on AKI and its management.
Causes of hypertension in infants and children.
Contrast Induced Nephropathy
Fact sheet on how contrast media can cause AKI.
Posterior urethral valve
Fact sheet on the presentation, complications and management of PUVs.
Chronic Kidney Disease
Fact sheet on the causes and management of CKD in infants and children.
Fact sheet on the presentation and management of the nephrotic syndrome in children.
Muitos Somos Raros
Patient Support Group For Cystinosis
Patient and family support list.
Icrim Institute for Support to the Child/Adolescent with Renal Disease
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families with CKD kids.
Brazilian Society of Solid Organs Transplants
Organ donation orientation and laws. Brazilian transplant registry news.
Brazilian Society of Pediatrics
The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked questions.
Brazilian Society of Nephrology
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic texts on CKD, hypertension, diabetes and so on.
Patient Support Group For Cystinosis
Living with Kidney Disease:
Choosing a Dialysis Therapy
Kidney Health Resources for Chronic Kidney Disease (Kidney Twins)
Canadian Association of Paediatric Nephrology
La Maladie Rénale Chronique
Hospital For Sick Children, Canada -About Kids Health
Topics: Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys and Girls, Cystoscopy, Urinary Catheter Care at Home, Voiding Cystourethrogram (VCUG).
Montreal Childrens Hospital
McMaster Childrens Hospital
CHINA-DOLIS CENTER FOR RARE DISORDERS
龙华古寺生命源泉透析基地 – 儿童肾病关爱网
Explains common renal diseases, contains FAQs and news regarding patient centred activities.
DANISH KIDNEY ASSOCIATION
The Egyptian Group for Orphan Renal Diseases
MANSOURA UNIVERSITY WEBSITE
Site offers info on the university’s clinical services, research activities and educational services.
EGYPTIAN SOCIETY OF NEPHROLOGY
Site offers clinical services, research activities and educational services.
CYSTINOSIS SUPPORT GROUP
Support for Egyptian families with cystinosis. email@example.com firstname.lastname@example.org
CAIRO UNIVERSITY CENTER FOR PEDIATRIC NEPHROLOGY AND TRANSPLANTATION
Research, Educational Material, Biopsy Requests.
Platform for primary hyperoxaluria.
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
LES REINS GONFLÉS
FONDATION DU REIN
Patients association, chronic kidney disease.
LE SYNDROME NEPHROTIQUE
LE RETOUR DES REINS TROGNONS
Patients association, chronic kidney disease, forums.
DYSPLASIE RÉNALE MULTIKYSTIQUE
GERMAN SOCIETY OF NEPHROLOGY (DGFN)
Association of all German nephrologists.
GERMAN PEDIATRIC NEPHROLOGY ASSOCIATION (GPN)
Association of German Ped. Nephrologists.
CYSTIC KIDNEY DISEASE IN CHILDREN
SOZIALE PÄDIATRIE UND JUGENDMEDIZIN
SELF HELP GROUP
NEMZETI VESI PROGRAM
NATIONAL KIDNEY PROGRAM
HUNGARY SOCIETY FOR NEPHROLOGY
Nephrotic Syndrome Diet
EXPERIMENTAL ZOOPROPHYLACTIC INSTITUTE OF THE VENEZIE
THE PORTAL OF EPIDEMIOLOGY FOR PUBLIC HEALTH
ANED (ASSOCIAZIONE NAZIONALE EMODIALIZZATI)
The Association “… is made between citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, their families and all those who are interested in achieving the aims of the Association. that are: prevention of kidney disease, a dialysis place for all people and more ‘close to home as possible, the promotion of the […]
FIR (FONDAZIONE ITALIANA DEL RENE)
The FIR non-profit organization brings together all patients with renal disease and all those – people, associations and organizations – who are engaged in dealing with kidney disease to treat them, to limit damage or to prevent them.
COMITATO I MILANI
AIDO (ASSOCIAZIONE ITALIANA DONATORI DI ORGANO)
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and transplantation of organs, tissues and cells.
SOCIETÀ ITALIANA DI NEFROLOGIA
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
KUWAIT MEDICAL ASSOCIATION
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
MEXICAN KIDNEY FOUNDATION
Information for patients and families onsupport programs for CKD and RRT patients.
MOROCCAN ASSOCIATION FOR COMBATING KIDNEY DISEASES
Information on Kidney diseases and their early detection as the first steps in the prevention.
EXPERTISE IN KAART
CYSTINOSE GROUP NEDERLANDS
KIND EN GROEI
CENTER FOR TUBULAR DISORDERS (KIDTUBE)
KIDSHEALTH, THE PAEDIATRIC SOCIETY OF NEW ZEALAND
Nigerian Association of Nephrology
Site offers educational services and info on conferences of interest.
African Pediatric Nephrology Association
LIVER AND KIDNEY TRANSPLANT SOCIETY
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of information brochures regarding different aspects in chronic kidney disease as well as after tx. They also support research projects.
LIFE HEALTH DOCTOR
HIPEROKSALURIA INFORMACJA O PACJENCIE
GUIDE FOR PATIENTS AND FAMILIES
PORTAL DA DIALISE
KOREAN SOCIETY OF PEDIATRIC NEPHROLOGY
CHILDREN’S KIDNEY CENTER, KTP-NATIONAL UNIVERSITY CHILDREN’S MEDICAL INSTITUTE
South African National Kidney Foundation
Site offers info on kidney disease, news and events from SA, research grants and links to other websites.
Kwa-Zulu Natal Kidney Association
Site offers info on the kidney, renal failure and diet in renal diseases.
NATIONAL KIDNEY FOUNDATION OF SA
SOUTH AFRICAN RENAL SOCIETY
Site offers info on events, nephrology training, practice guidelines and SA renal registry.
RENAL CARE SOCIETY OF SOUTH AFRICA
PATIENT SUPPORT GROUP
LOWE SYNDROME PROJECT
Syrian Arab Republic
TURKISH CYSTINOSIS ASSOCIATION
TURKISH CYSTINOSIS ASSOCIATION
This is the website of cystinosis established by Turkish cystinosis family association.
Educational activities and information about kidney diseases.
TURKISH HYPERTENSION ASSOCIATION
Contains educational material on hypertension for patients.
TURKISH PEDIATRIC NEPHROLOGY ASSOCIATION
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
LOWE SYNDROME TRUST
KIDNEY RESEARCH UK
RARE RENAL DISEASE
Nationally accredited (Information Standard) Information on Rare renal diseases.
TRANSITION TO ADULT CARE : READY STEADY GO PROGRAM
Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.
INFOKID (BAPN + RCPCH + BKPA)
Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.
EUROPEAN HYPEROXALURIA CONSORTIUM
UNC KIDNEY CENTER
LOWE SYNDROME ASSOCIATION
UNC SCHOOL OF MEDICINE
ALPORT SYNDROME FOUNDATION
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
THE BARTTER SITE
US NATIONAL LIBRARY OF MEDICINE
Topics: Care of a Foley Catheter, Dialysis, Hypertension, Kidney Failure, UTI.