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Argentina
Hospital Universitario Austral
Manual for parents and patients Renal Pediatric Transplant Unit
Hospital Universitario Austral
Information for patients and parents for care after pediatric renal transplant
Hospital Universitario Austral from Buenos Aires Argentina
Information for care after pediatric renal transplant
Hospital Universitario Austral from Buenos Aires Argentina
Video on renal diseases in infancy
Sociedad Argentina de Pediatría
Information for the community regarding common nephrological diseases Topic Link Nephrotic Syndrome Sindrome nefrotico UTI Sindrome de mala eliminacion UTI Infeccion urinaria Hydronephrosis Dilatación de la vía urinaria en el feto HUS Prevención de SUH CKD Ninos con resgo de presentar enfermedad renal crónica Hematuria Hematuria Normal Kidney Cuidado de los rinones Miscellaneous Poliuria Miscellaneous […]
Australia
The Royal Children’s Hospital Melbourne
Website offers fact sheets on UTI, urinary catheters and urine samples.
Monash Childrens Hospital
Website offers information sheets on a wide range of renal and urological conditions in children.
Kidney Health Australia
Website offers a wide range of information on the functions of the kidneys, detection of renal disease and support for kidney patients.
Bangladesh
Role of Antenatal Ultrasound in kidney disease
Detection of renal anomalies by antenatal ultrasound.
Chronic kidney disease in preterm and low birth weight infants
Fact sheet on the relationship between low birth weight and preterm deliveries and CKD.
Posterior urethral valve
Fact sheet on the presentation, complications and management of PUVs.
Chronic Kidney Disease
Fact sheet on the causes and management of CKD in infants and children.
Nephrotic Syndrome
Fact sheet on the presentation and management of the nephrotic syndrome in children.
Brazil
Cystinosis
Fact sheet on cystinosis including the causes, symptoms and treatment of the disease.
Icrim Institute for Support to the Child/Adolescent with Renal Disease
Brief information on pediatric renal diseases. The NGO’s main objective is to give some financial and psychological support to families with CKD kids.
Brazilian Society of Solid Organs Transplants
Organ donation orientation and laws. Brazilian transplant registry news.
Brazilian Society of Pediatrics
The site provides the community with booklets on normal growth and development according to age groups, nutrition and frequently asked questions.
Brazilian Society of Nephrology
The site has a page dedicated to the community with different topics: general health, renal health, patients rights and basic texts on CKD, hypertension, diabetes and so on.
Canada
Living With Reduced Kidney Functions
Books and videos on living with reduced kidney function from the Canadian Kidney Knowledge Translation and Generation Network.
Planning for Dialysis
Infographic on planning for dialysis from the Canadian Kidney Knowledge Translation and Generation Network.
Healthy Kidneys
Educational tools including modules, booklets, activity sheets, and glossary from the Canadian Kidney Knowledge Translation and Generation Network.
Canadian Association of Paediatric Nephrology
Family resources for many pediatric renal disorders.
About Kids Health, Canada
General pediatrics topics and many pediatric nephrology topics including Bed-Wetting, Taking Your Child’s Blood Pressure, Clean Intermittent Catheterization for Boys and Girls, Cystoscopy, Urinary Catheter Care at Home, Voiding Cystourethrogram (VCUG)…..etc.
Hemolytic Uremic Syndrome
A not-for-profit organization with the mission of supporting patients and families living with atypical Hemolytic Uremic Syndrome.
Hydronephrosis
A booklet from Montreal Children’s Hospital for families with children with hydronephrosis in pdf format.
Chile
Fundacion de Educacion renal Sociedad Chilena de Nefrologia
General information on kidney diseases (adults)
China
Children’s Kidney Fund (CKF)
Official website of CKF, non- governmental organization providing funding support and various programs to paediatric nephrology patients.
The Hong Kong Paediatric Nephrology Society (HKPNS )
Official website of HKPNS with patient education materials.
The Hong Kong Nephrology Society (HKSN)
Official website of HKKF with patient education materials and support programs
Smart Patient – Hospital Authority’s website ( on kidney diseases )
Data provision on kidney diseases.
The Hong Kong Kidney Foundation (HKKF)
Official website of HKKF with patient education materials and support programs
中国科普网 China Science Communication
Data provision on the recent advance of medical Science in China.
中国儿童遗传性肾脏疾病数据库 Chinese Children Genetic Kidney Disease Database
Data provision on Genetic kidney disease in China.
Denmark
DANISH KIDNEY ASSOCIATION
Website offering information on renal diseases, dialysis and transplantation
Egypt
MANSOURA UNIVERSITY WEBSITE
Site offers info on the university’s clinical services, research activities and educational services.
EGYPTIAN SOCIETY OF NEPHROLOGY
Site offers clinical services, research activities and educational services.
CAIRO UNIVERSITY CENTER FOR PEDIATRIC NEPHROLOGY AND TRANSPLANTATION
Research, Educational Material, Biopsy Requests.
France
TRANSFORME
Patients association, aiming at enhancing physical activity after transplantation, Part of the International Sport Games for Transplanted Patients.
Germany
KIDSDOC
A discussion of vesico-ureteral reflux. Additional pediatric nephrology topics accessible from links on the page.
Hungary
Nephrotic Syndrome
Page from the Hungarian National Kidney Program on the nephrotic syndrome.
India
Italy
HEMOLYTIC UREMIC SYNDROME
Page on HUS from the Experimental Zooprophylactic Institute of Venice.
HEMOLYTIC UREMIC SYNDROME
Page on HUS from the Italian Portal of Epidemiology For Public Health.
National Hemodialysis Association
Association for citizens undergoing dialysis, organ transplantation, conservative treatment for chronic kidney disease, and their families.
Italian Kidney Foundation
Non-profit organization aiming at the prevention and early detection of renal disease, diffusion of transplantation, and promoting the dialogue between patients, healthcare professionals and industry associations.
AIDO (ASSOCIAZIONE ITALIANA DONATORI DI ORGANO)
It promotes and participates in training, information and awareness and support for scientific research in the field of collecting and transplantation of organs, tissues and cells.
SOCIETÀ ITALIANA DI NEFROLOGIA
Educational activities medical staff, doctors and nurses, patients and their families, Prevention campaigns and health education.
UNIAMO- FEDERAZIONE ITALIANA MALATTIE RARE
Parental information about rare kidney diseases and pediatric nephrology services with specific expertise. Social assistance on law benefits.
Kenya
Kenya Renal Association
Website contains guidelines, contact information, forthcoming events
Kuwait
KUWAIT MEDICAL ASSOCIATION
Contains information on CKD, hypertension, Renal stones, UTI, PKD, SLS, Dialysis and Transplantation.
Lithuania
Mexico
MEXICAN KIDNEY FOUNDATION
Information for patients and families onsupport programs for CKD and RRT patients.
Morocco
MOROCCAN ASSOCIATION FOR COMBATING KIDNEY DISEASES
Information on Kidney diseases and their early detection as the first steps in the prevention.
Netherlands
New Zealand
Nigeria
Nigerian Association of Nephrology
Site offers educational services and info on conferences of interest.
Norway
LIVER AND KIDNEY TRANSPLANT SOCIETY
This is a patient organization which offers meetings, activities for young patients, family camps. They also produce a lot of information brochures regarding different aspects in chronic kidney disease as well as after tx. They also support research projects.
Poland
Portugal
Republic of
Singapore
South Africa
South African National Kidney Foundation
Site offers info on kidney disease, news and events from SA, research grants and links to other websites.
Kwa-Zulu Natal Kidney Association
Site offers info on the kidney, renal failure and diet in renal diseases.
SOUTH AFRICAN RENAL SOCIETY
Site offers info on events, nephrology training, practice guidelines and SA renal registry.
Spain
Hospital Universitario Austral
Quick guide for patients and parents Automatized Peritoneal Dialysis
Asociacion española de Pediatria (Spanish association of Pediatrics)
Main nephrological diseases in children
Sweden
Syrian Arab Republic
Turkey
TURKISH CYSTINOSIS ASSOCIATION
This is the website of cystinosis established by Turkish cystinosis family association.
TURKISH HYPERTENSION ASSOCIATION
Contains educational material on hypertension for patients.
TURKISH PEDIATRIC NEPHROLOGY ASSOCIATION
Patients section contains information on UTI, VUR, Enuresis, CKD, AKI, CAKUT.
United Kingdom
RARE RENAL DISEASE
Nationally accredited (Information Standard) Information on Rare renal diseases.
TRANSITION TO ADULT CARE : READY STEADY GO PROGRAM
Web and paper-based programme comprosing information and questionaires on transition for families of children with long term conditions.
INFOKID (BAPN + RCPCH + BKPA)
Web and paper-based Nationally accredited (Information Standard) Information on conditions, treatments, practical information all linked via user-friendly web platform.
United States
ALPORT SYNDROME FOUNDATION
General information, diagnosis, treatment, videos from experts; patient registry,clinical trials; patient support/connections; physiician recommendations.
US NATIONAL LIBRARY OF MEDICINE
Topics: Care of a Foley Catheter, Dialysis, Hypertension, Kidney Failure, UTI.