Cystinosis Research Foundation – $2.0 million available for new grants


Dear Medical and Scientific Community:

The Cystinosis Research Foundation is pleased to announce its Fall 2015 call for research proposals and fellowships. We are accepting applications for research studies and for the Post-Doctoral Cystinosis Research Fellowship Program. Our goal is to fund the best and most promising research in the world in an effort to ensure that better treatments and a cure for cystinosis are found as soon as possible.

Currently, the CRF has $2.0 million available for new research grants and fellowships.

The Cystinosis Research Foundation (CRF) was established in 2003 with the goal of aggressively pursuing new and better treatments for cystinosis and ultimately a cure. The foundation was started in honor of our daughter, Natalie who was diagnosed with cystinosis as an infant. Thirteen years ago, clinical research and multi-year research studies were rare, and it was difficult to attract new researchers because of a lack of funding. Today, cystinosis families from around the world have joined CRF in a united effort to fund research and as a result, CRF is the largest private fund provider of cystinosis research in the world and has raised $29 million, all committed to scientific and medical research. CRF has issued 131 multi-year research and fellowship grants in 12 countries. CRF supported researchers have published 56 articles in prestigious scientific and medical journals. The foundation issues two global calls for research and fellowship applications each year in an effort to invest the donations as they are received. This year, in the first round of funding in 2015, CRF issued six grants totaling $1,322,838 million.

The Cystinosis Research Foundation works closely with the CRF Scientific Review Board (SRB) comprised of leading experts in the field of cystinosis. The chair of the CRF Scientific Review Board is Dr. Corinne Antignac. A list of the SRB members is included in the Grant Fellowship Guidelines document (attached).

The SRB provides independent and objective reviews for each research proposal submitted. The SRB follows the grant review guidelines established by CRF and rates every proposal on the NIH scale of standards. After careful analysis, the SRB recommends proposals to CRF for funding based on the scientific merits of each proposal.

Our goal is to accelerate the best ideas and most promising research towards new discoveries in the field of cystinosis. CRF issues grants for bench, clinical and translational research. We place strong emphasis on clinical and translational research that will result in novel treatments and a cure for cystinosis. We are interested in supporting new investigators and encourage them to apply either as research fellows or investigators.

The CRF Grant Proposal and Fellowship Guidelines are attached for your information. We have also attached a cover sheet for research proposals and one for research fellowships. The cover sheets are mandatory for all applications submitted.

We look forward to receiving your proposal. To learn more about our foundation, visit our web site at or if you have any questions, please email Nancy Stack at [email protected].

The deadline for Fall 2015 applications is Monday, October 5, 2015.

We encourage you to share this information with your colleagues who might be interested in researching cystinosis. We are excited about the future of cystinosis research and the potential for new discoveries about cystinosis and its complications. We appreciate your interest in cystinosis research and we look forward to receiving your application and to working together to find better treatments and a cure for cystinosis.


Nancy Stack President Cystinosis Research Foundation 18802 Bardeen Avenue Irvine, CA 92612

(949) 223-7610
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