The Standardized Outcomes in Nephrology – Kids (SONG-Kids) is an international initiative that aims to identify outcomes that are important to children and adolescents with chronic kidney disease, their caregivers and families, clinicians, and other health professionals. This will inform the development of a core outcome set to be reported in all clinical trials (and other research) in children with chronic kidney disease (all stages).
Establishing a core outcome set can help to ensure that trials report outcomes that are important and relevant for decision-making.
You are invited to participate in the SONG-Kids Delphi panel to achieve consensus (agreement) on the most important outcomes that should be included in the core outcome set for kidney disease. This involves completing a Delphi survey, which includes completing two rounds starting in June 2018 and each survey should take approximately 10 – 15 minutes to complete. All participants will receive a copy of the results.
To join the SONG-Kids Delphi Panel, you can find the survey at:
http://songinitiative.org/projects/song-kids/song-kids-delphi-survey/
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